Lesley Berry, 74, of Felixstowe, diagnosed with idiopathic pulmonary fibrosis (IPF) is on a mission to help others recognise symptoms early
A 74-year-old who has been diagnosed with a life-changing and limiting illness is on a mission to help others recognise the symptoms early.
Lesley Berry, of Felixstowe, was diagnosed with idiopathic pulmonary fibrosis (IPF) by Ipswich and Papworth Hospitals in June 2020.
It was after she experienced coughs and increased breathlessness for more than a year.
Ms Berry, who knew little about the illness at the time, is now speaking out about her condition to raise awareness and encourage others with symptoms to see their GP.
“Pulmonary fibrosis is a serious, life-limiting disease, which causes the lungs to become stiffer and smaller over time, making it more and more difficult to breathe,” said Ms Berry.
“The prognosis after diagnosis is between three and five years during which time life as you know it declines.
“The illness steals your breath, shrinks your world and makes everyday life a huge challenge.
“It stops you from doing all the things that were easy before, like showering, dressing and enjoying time with grandchildren, family and friends.
“It takes extraordinary effort to do ordinary things – it’s like climbing a mountain every single day.”
IPF is a type of pulmonary fibrosis where the cause cannot be found.
Although there is currently no cure, anti-fibrotic drugs can help to slow its progression, while some patients may be suitable for a lung transplant.
Those with the illness may eventually need to rely on oxygen cylinders to help them breathe.
IPF is more likely to affect people over 50, those with a family history of lung scarring or individuals who smoke or have smoked.
Ms Berry is now raising funds for research to help find a cure. Click here to donate.
She praised the respiratory team at Ipswich Hospital for both medical and holistic support.
The team have also referred Ms Berry to a hospice for extra support.
She added: “I am now trying to spread the word about this illness so that others can get help early.
“If you’re feeling out of breath with a persistent cough which lasts more than eight weeks, ask your GP if it could it be pulmonary fibrosis.
“You could be given medication to help slow its progression, in turn giving you more time doing the things you enjoy with the people you love.”