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Layla Davis, three, from Great Blakenham, near Ipswich, nicknamed ‘Fluffy’ by friends after being diagnosed with ‘uncombable hair syndrome’





A girl has been nicknamed "Fluffy" by her preschool pals for her frizzy hair - as she is one of only 100 people in the world with 'uncombable hair syndrome'.

Layla Davis, three, who lives in Great Blakenham, near Ipswich, with mum Charlotte, 30, dad Kevin, 37, and brother Freddie, four, hit the headlines while just a tot for her blonde locks which cannot be combed flat.

She has now started at nursery, where her hair has led to her being nicknamed 'Fluffy’.

Layla Davis, three, from Great Blakenham, near Ipswich, has been diagnosed with 'uncombable hair syndrome', making her one of only 100 in the world. Picture: SWNS
Layla Davis, three, from Great Blakenham, near Ipswich, has been diagnosed with 'uncombable hair syndrome', making her one of only 100 in the world. Picture: SWNS

She has been diagnosed with uncombable hair syndrome (UHS) - a condition characterised by dry, frizzy hair which defies attempts to tame it.

Charlotte said that while Layla's hair had gotten longer, it had not really changed in the past year. "Her preschool friends call her 'Fluffy' because of her hair as there is another Layla in her class,” she said.

"The other children are never negative about it and it means she is a very happy girl - she’s not shy and talks to everyone.

Layla Davis, three, lives in Great Blakenham, near Ipswich, with mum Charlotte, 30, dad Kevin, 37, and brother Freddie, four. Picture: SWNS
Layla Davis, three, lives in Great Blakenham, near Ipswich, with mum Charlotte, 30, dad Kevin, 37, and brother Freddie, four. Picture: SWNS

Layla had her first hair cut in February last year. Her parents are now able to plait it, but must be careful as it is very fragile and can easily break off.

UHS develops in childhood, and there are only around 100 cases in the world. Her hair has previously earned Layla nicknames like Boris Johnson and Albert Einstein.

Charlotte said it is mostly adults that talk about Layla's hair and she has had a few instances where people have touched it without asking first.

Layla's mum Charlotte said that her hair has not changed much in the past year, other than it getting longer. Picture: SWNS
Layla's mum Charlotte said that her hair has not changed much in the past year, other than it getting longer. Picture: SWNS

She said: "People seem to think it is okay to reach out and touch her – I have to teach her about consent and it's tricky for me to teach a three year old why people might want to touch her hair.

“People never mean anything bad by it but people do just reach out, wanting to feel it."

Despite the occasional unwelcome attention, Charlotte said Layla is a happy-go-lucky little girl who loves singing and ballet dancing.

Layla Davis, three, from Great Blakenham, near Ipswich, is nicknamed 'Fluffy' by her friends at pre-school. Picture: SWNS
Layla Davis, three, from Great Blakenham, near Ipswich, is nicknamed 'Fluffy' by her friends at pre-school. Picture: SWNS

Charlotte set up an Instagram account for Layla and said the support they had received and been able to give was amazing.

She said: "We've had a lot of people message her from all over the world and because of Layla, they are now learning there is a name for their condition or that there is someone else out there."

"I hope her hair doesn’t change and it gets a bit longer so we can put it in a pony tail one day. I just want her to love it as when she grows up kids will suddenly start to make comments.

Mum Charlotte said Layla loves singing and ballet dancing. Picture: SWNS
Mum Charlotte said Layla loves singing and ballet dancing. Picture: SWNS

“It's your job as a mum to equip your kids for any situation so I just hope she thinks its cool like I do."

The condition normally improves by adolescence, and is also known as spun glass hair.