Parents from Clare in urgent plea as six-year-old daughter with epilepsy faces medicine shortage due to coronavirus pandemic
The mother of a young girl with severe epilepsy says her daughter’s health has dramatically deteriorated due to a shortage of medicinal cannabis.
Indie-Rose Clarry has been suffering from debilitating seizures after her parents were forced to significantly reduce her medication of cannabis oil during the coronavirus lockdown.
Due to global travel restrictions being imposed to prevent the spread of Covid-19, the six-year-old’s father, Anthony, has been unable to replenish his daughter’s supply of medication, which he has to source from the Netherlands.
Expressing concern about her daughter’s deteriorating health, Indie-Rose’s mother, Tannine Montgomery said: “It’s got to the point where she has got quite sick and her seizures have become worse.”
Devastated that her daughter’s health has suffered as a consequence of limited access to the drug in the UK, Miss Montgomery, of Maxim Lane in Clare added: “She was doing so well; we had seen a reduction in seizures of 75 per cent.”
Having had multiple applications for a prescription of medicinal cannabis refused by the NHS, Miss Montgomery said the family had been forced to consider other forms of medication, which have proven ineffective in helping to alleviate Indie-Rose’s symptoms.
An annual event aimed at raising awareness about the urgent need to reform the application process surrounding medicinal cannabis is being staged in Bury St Edmunds on Sunday.
Campaigners will meet at 10am, before commencing on a 20-mile walk from the abbey ruins to Clare Castle Country Park.
To support Indie, donations can be given online by going to www.gofundme.com/indierose.