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Laxfield man to pay for EACH's services for the day, marking what would have been grandson's third birthday, after ultra-marathon through Amazon jungle




A bereaved grandad will cover the costs of a children's charity's services across the region today on what would have been his grandson's third birthday, after completing an ultra-marathon through the Amazon jungle.

Nick Edwards, 61, of Laxfield, is remembering his grandson Noah Finnerty by donating the £7,100 he raised to East Anglia's Children's Hospices (EACH) which will pay for its services across Suffolk and East Essex today.

Nick was inspired to take on his 142-mile ultra-marathon through the Amazon jungle of South America after Noah spent his final six days at EACH's hospice in Ipswich.

Nick Edwards with his grandson Noah Finnerty. Picture: Nick Edwards/EACH
Nick Edwards with his grandson Noah Finnerty. Picture: Nick Edwards/EACH

Noah, who was born to Nick's step-daughter Lucy Holloway and son-in-law Stuart Finnerty, from Framlingham, had a rare, genetic liver disorder and died a week shy of six months in November 2018.

Nick said: “My initial thoughts when first told of Noah’s condition were the doctors would make him better, he would be healed, we’d all get through this and have a normal, healthy, little grandson.

"The idea of him not being healed never entered my mind.

Noah Finnerty spent his final six days at EACH's The Treehouse in Ipswich. Picture: Nick Edwards/EACH
Noah Finnerty spent his final six days at EACH's The Treehouse in Ipswich. Picture: Nick Edwards/EACH

“Noah was the most beautiful little chap who seemed to me to have very wise eyes.

"When he looked at me, I felt he was able to look inside my soul and see what I was thinking.

"He endured his suffering with a quiet and passive strength that was quite remarkable and unforgettable.”

When it became clear doctors could do no more for Noah, the family went to The Treehouse, EACH's hospice in Ipswich, where they spent their final days together.

Baby Noah Finnerty had a rare, genetic liver disorder. Picture: Nick Edwards/EACH
Baby Noah Finnerty had a rare, genetic liver disorder. Picture: Nick Edwards/EACH

Nick added: "There is never enough praise, commendation or words I can say about EACH and the support their team extended to our family following the days after Noah’s passing.

"It is truly an amazing resource, beyond exceptional and we’ll be forever grateful and in their debt.”

It was the 'deepest heart-breaking grief' Nick had ever felt, and yet it spurred Nick on to find the toughest physical and mental challenge he could, and in June 2019, he set off for Peru.

Nick Edwards trekked almost 150 miles through the jungle in his grandson's memory. Picture: Mikkel Beisner
Nick Edwards trekked almost 150 miles through the jungle in his grandson's memory. Picture: Mikkel Beisner

“My hope was within that suffering of endurance I’d find a deeper profound meaning,” he said.

“The Amazon didn’t disappoint. Throughout the extreme highs and lows of that effort I sensed and felt Noah’s presence.

"I saw him in a thousand different places, through the birds, the rivers, the trees and the butterflies.

Nick Edwards on his ultra marathon through the Amazon jungle in his grandson's memory. Picture: Mikkel Beisner
Nick Edwards on his ultra marathon through the Amazon jungle in his grandson's memory. Picture: Mikkel Beisner

"At night I heard him through an orchestra of sounds coming from within the jungle, buzzing with life, Noah’s energy, urging me onwards.

"Without Noah in my heart I know I certainly wouldn’t have completed it.

"In my weakest moments, he’d whisper ‘Go on, grandpa, you got this.’ Out of the 50 starters, only 19 competitors finished and we came an honourable 15th place.”

Nick crossed the finishing line in 47 hours and 29 minutes.

Nick Edwards is paying for EACH's services in Suffolk and East Essex today after his ultra-marathon through the Amazon jungle raised £7,100. Picture: Nick Edwards/EACH
Nick Edwards is paying for EACH's services in Suffolk and East Essex today after his ultra-marathon through the Amazon jungle raised £7,100. Picture: Nick Edwards/EACH

He said the experience had a lasting impact on him.

“I came to realise and truly believe the spirit and energy of Noah’s true essence is still around and within me, wherever I am.

"I see and feel him now, when I look down my garden and see new leaves upon the trees in spring, a family of squirrels playing or a clutch of different birds at our feeding stations, or even the occasional muntjac that wanders across our lawn. I know he’s a part of that.

“I miss Noah terribly, think of him constantly and shed tears often when I hear his name, but I no longer grieve for him.

"I am at peace and I truly believe, with all my heart, Noah is, too.

"Life moves on and, for me, it’s a much richer place for having had him in it.”

To mark what would have been Noah's third birthday today, Nick is now paying for a day of care and support from EACH across Suffolk and East Essex.

“Noah’s passing has shown me that no one, regardless of income or race, is beyond life’s tragic events.

"To have, in some small way, helped others who are dealing with these life-changing events, albeit for a day, is gratifying.

"It is also insightful as to the energy required to keep these facilities running so that they can continue to do their amazing work.”

For more information about EACH visit www.each.org.uk.

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